Just a short quick post to fill you in before I head to bed (finals week, yikes!)
Today I got a few different exciting pieces of information. First, my mom, my neighbor, and I went to see a physic to see what he was feeling about the upcoming visit to St. Louis. He said this is the doctor I need to see, he was sent here to do this. And that he sees me completely healed after the surgery, 100% better. He said the surgery will be sometime this year because of my breathing problem. It's urgent. I'm even more anxious now to get to St. Louis and see what he has to say. March 31st can't come fast enough.
I also found out today that we're making a week long trip to Florida in about 2 weeks! I'm so excited and can't wait!
I'll update more later :)
My Story.
Thursday, January 20, 2011
Friday, January 14, 2011
catching up.
It's been a good 2 or 3 months since I've written last and I finally have the time/ambition to catch you up on what's happening in my life. Thanksgiving, Black Friday shopping, and best of all, Christmas have all past (obviously) so now things are slowing down and my schedule has been consisting of school, school, and more school. I'm so ready for spring break.
BIG NEWS!
At my last doctor appointment regarding my scoliosis, my doctor discovered that my kyphosis (a type of scoliosis) is getting worse. My spine is continuing to grow, when it is not supposed to, and curving still as it grows. This puts pressure on my spinal cord, and eventually will/could damage it, paralyzing me from the neck down. My doctor referred me to a doctor in st. louis, known as the best spine specialist in the country. Because of my muscular dystrophy and other complications, any procedure I might have involving my spinal cord has serious risks. We researched the doctor online and he looks like a great doctor. He's even cured some patient's scoliosis. Cured. That's huge to me. I'm hoping he has some optimistic views about another possible surgery for me that will almost totally straighten my spine. And because he is the best in the country, he's super hard to get a hold of and very busy, so the earliest appointment available is March 31st. But we'll take it; I would wait years for a life changing surgery like this.
I'm a really impatient person, especially when it comes to things like this, so waiting will be hard but I can do it. I'm eager to find out what they can do for me. When I think of the possible surgery, I feel excitement, nervousness, joy, anxious, happiness, worried, and every other emotion you might feel when you could have a risky, life-changing operation. But most of all, I feel like this could really help me. And I can't wait.
BIG NEWS!
At my last doctor appointment regarding my scoliosis, my doctor discovered that my kyphosis (a type of scoliosis) is getting worse. My spine is continuing to grow, when it is not supposed to, and curving still as it grows. This puts pressure on my spinal cord, and eventually will/could damage it, paralyzing me from the neck down. My doctor referred me to a doctor in st. louis, known as the best spine specialist in the country. Because of my muscular dystrophy and other complications, any procedure I might have involving my spinal cord has serious risks. We researched the doctor online and he looks like a great doctor. He's even cured some patient's scoliosis. Cured. That's huge to me. I'm hoping he has some optimistic views about another possible surgery for me that will almost totally straighten my spine. And because he is the best in the country, he's super hard to get a hold of and very busy, so the earliest appointment available is March 31st. But we'll take it; I would wait years for a life changing surgery like this.
I'm a really impatient person, especially when it comes to things like this, so waiting will be hard but I can do it. I'm eager to find out what they can do for me. When I think of the possible surgery, I feel excitement, nervousness, joy, anxious, happiness, worried, and every other emotion you might feel when you could have a risky, life-changing operation. But most of all, I feel like this could really help me. And I can't wait.
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