Monday, March 14, 2011

florida, baby.

It started on an airplane.
I don't think Kayla was ready for this one.

We boarded the plane, where we left snow, ice, and 15 degree weather.
And got off to this.

The first few days were spent at the hotel, swimming and tanning in the glorious Florida sun. Oh, and shopping of course. Then was the Superbowl. And we are alllllll for the Packers (and not just because they're the champions). We were about the only ones at the hotel wearing Packer apparel. And we wore it with pride.

After deciding that you can't go to Florida and not visit the beach, we drove down to Cocoa Beach.

Hearing that the weather was supposed to go downhill, we made the decision to go to Disney's Magic Kingdom for the day. I hadn't been there since I was about 6 years old and I loved it. I could ride Space Mountain all day.

Loving the sun too much to leave after just a week, we extended our vacation three days longer than originally intended.

 After sorting out the car rental and flight situations, we left our hotel (my favorite) and drove down to Ft Lauderdale where we spent two nights, walking downtown past all the small tourist-y shops and beach themed resturaunts, and shell-searching on the beach.
Our second stop was Daytona where we shopped at a wonderful mall near Miami (quite a trip to get there), attended the Bud Shootout race, considering it was the week of the Daytona 500, and drove on the beach.
Even with the extra days, it wasn't a long enough vacation for me. I miss the Florida sunshine, visiting new places, and the sand between my toes. But I also missed my house, my friends, and my own comfy bed.
So I was glad to be back, but I would jump on a plane and do it all again in a heartbeat.

Thursday, January 20, 2011

physic, florida, and the future.

Just a short quick post to fill you in before I head to bed (finals week, yikes!)
Today I got a few different exciting pieces of information. First, my mom, my neighbor, and I went to see a physic to see what he was feeling about the upcoming visit to St. Louis. He said this is the doctor I need to see, he was sent here to do this. And that he sees me completely healed after the surgery, 100% better. He said the surgery will be sometime this year because of my breathing problem. It's urgent. I'm even more anxious now to get to St. Louis and see what he has to say. March 31st can't come fast enough.
I also found out today that we're making a week long trip to Florida in about 2 weeks! I'm so excited and can't wait!
I'll update more later :)

Friday, January 14, 2011

catching up.

It's been a good 2 or 3 months since I've written last and I finally have the time/ambition to catch you up on what's happening in my life. Thanksgiving, Black Friday shopping, and best of all, Christmas have all past (obviously) so now things are slowing down and my schedule has been consisting of school, school, and more school. I'm so ready for spring break.

At my last doctor appointment regarding my scoliosis, my doctor discovered that my kyphosis (a type of scoliosis) is getting worse. My spine is continuing to grow, when it is not supposed to, and curving still as it grows. This puts pressure on my spinal cord, and eventually will/could damage it, paralyzing me from the neck down. My doctor referred me to a doctor in st. louis, known as the best spine specialist in the country. Because of my muscular dystrophy and other complications, any procedure I might have involving my spinal cord has serious risks. We researched the doctor online and he looks like a great doctor. He's even cured some patient's scoliosis. Cured. That's huge to me. I'm hoping he has some optimistic views about another possible surgery for me that will almost totally straighten my spine. And because he is the best in the country, he's super hard to get a hold of and very busy, so the earliest appointment available is March 31st. But we'll take it; I would wait years for a life changing surgery like this.

I'm a really impatient person, especially when it comes to things like this, so waiting will be hard but I can do it. I'm eager to find out what they can do for me. When I think of the possible surgery, I feel excitement, nervousness, joy, anxious, happiness, worried, and every other emotion you might feel when you could have a risky, life-changing operation. But most of all, I feel like this could really help me. And I can't wait.