Friday, January 14, 2011

catching up.

It's been a good 2 or 3 months since I've written last and I finally have the time/ambition to catch you up on what's happening in my life. Thanksgiving, Black Friday shopping, and best of all, Christmas have all past (obviously) so now things are slowing down and my schedule has been consisting of school, school, and more school. I'm so ready for spring break.

At my last doctor appointment regarding my scoliosis, my doctor discovered that my kyphosis (a type of scoliosis) is getting worse. My spine is continuing to grow, when it is not supposed to, and curving still as it grows. This puts pressure on my spinal cord, and eventually will/could damage it, paralyzing me from the neck down. My doctor referred me to a doctor in st. louis, known as the best spine specialist in the country. Because of my muscular dystrophy and other complications, any procedure I might have involving my spinal cord has serious risks. We researched the doctor online and he looks like a great doctor. He's even cured some patient's scoliosis. Cured. That's huge to me. I'm hoping he has some optimistic views about another possible surgery for me that will almost totally straighten my spine. And because he is the best in the country, he's super hard to get a hold of and very busy, so the earliest appointment available is March 31st. But we'll take it; I would wait years for a life changing surgery like this.

I'm a really impatient person, especially when it comes to things like this, so waiting will be hard but I can do it. I'm eager to find out what they can do for me. When I think of the possible surgery, I feel excitement, nervousness, joy, anxious, happiness, worried, and every other emotion you might feel when you could have a risky, life-changing operation. But most of all, I feel like this could really help me. And I can't wait.

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